Legless, armless child resists challenges
By Yannason Duncan
Life for five-year-old, Edon Williams, who was born without both arms and legs and suffers from a rare disease called, bilateral transverse Terminal Hemimelia, could be considered challenging.
However, the five-year-old, who is independent, moves about on his own. The child, who gets around by dragging on his butt, behaves like an ordinary child.
Edon Williams was born on March 30, 2005, to Coleen and Terry Williams, at Barima, in the North West District. He is the third of five children.
Although his two brothers and two sisters were born without any disabilities, most of his parents’ attention has been directed towards Edon.
I met Edon Wednesday morning at the Wesleyan Church, at Charity where he resides with his caretaker, Pastor Orpha Singh.
Amazingly when I enquired about him, he came sliding on his butt to greet me and the first thing he said when asked what his name was, he replied positively ‘Edon Williams.’
The little lad who seems relaxed in the presence of people also likes friends.
Edon said that his best friend’s name is Corlenda who normally visits him regularly.
Little Edon took the opportunity to write his name, sing inspirational songs ‘This is my desire’ and ‘Lord I lift your name on high’, pray and even recite his alphabet. The fast learner was also observed playing with his toys, his favourite the toy gun.
Orpah, who has been a pastor at the Wesleyan Church in Charity for the past 17 years and has been caring for little Edon for the past six months, said that although Edon would get her a little busy, she adores him and would not trade him for the world.
“I love to sit and teach him because he learns.”
According to Pastor Singh, she first met Edon at Barima almost five years ago. The pastor who works collectively with missionaries, said little Edon had to be properly cared for in a more conducive environment, unlike in the interior.
He needs adequate medical and education advances. Singh said that because Edon’s condition is rare, especially in Guyana, a medical report, has shown that Edon would have to be facilitated with extensive prosthetic fittings over prolonged periods, in order for him to be both dependent and independent and functional.
She said that when Edon was first placed in her care, he did not know to do most of the things he is now doing. She noted that should he be placed in a school environment, most of the attention would be diverted towards him, because of his condition.
“I am not saying I do not want him to attend regular school, but in his condition, it’s understandable. The main thing is that he is exposed to a more conducive enviorment, where he is adapting and is learning.’
Pastor Singh who said that she is only tasked with the responsibility of bathing and cleaning Edon, added that he does not like being alone.
The child, who she further described as physically strong, would realize his true potential if he gets international help, readily.